Sorry, it's taken overnight to update but was so tired.

Dr C looked at the scan results and said that although inflammation the brain was possibly a bit more, hence the convulsions but to stay on steroid amount for now.

He's decided to stop the Herceptin and Zometa (if I need bone strengthener I can have every couple of months).

Will by trying a new chemo (Xeloda) and it's an oral one, still have to go every 3 weeks to get bloods done and supply of tabs for 14 days.

I will be rattling around can see how I tolerate it and go from there.

Liver tumour not really changed but not gone.

Lung ok for now.

Love Clare xx

Thursday, traumatic (for me anyway), CT Scan. Nothing unusual about that but I'd been up to the chemo ward to have my port excesses so the contrast dye could be put through. They took one look down in X-Ray and weren't at all pleased. This was after I'd already had a terrible experience in the toilet with the barium meal!!

I eventually managed to get across that the port was accessed on the chemo ward BUT then they asked how much dye to put through, surely my notes should say that? Anyway after getting on and off the bed twice they did I it for me. Since 2009 I have never had such trouble. Ended up so upset.

Chemo nurses were furious so it wasn't just me.

Friday, much better day at hospital, heart Echo and the cardio man was lovely,took his time and let me lay on my back instead of my side..totally different experience.

Today, had a lovely lie-in and actually had a bit of Jono's deelish roast (not as good as mine).

Each day is different and so that's how we take it.

Thank you all for your lovely comments/emails and messages...not giving up yet, none of us are.

Love Clare xx