Went up to London yesterday with Jon's sisters Michelle and Mandy, his Mam and Andrew's wife Michelle...

Had a brilliant time...started with Champers in the hotel before we went to the show and then the show...

Saw 'We will Rock You' and it was fantastic (not quite up there with Chigago but a very close 2nd).  After the show we went to a pub for a few drinks.

Went to Chiquitos and thought we'd have a long wait for a table but they called us within 20mins...Andrew, Aaron and their mate Kevin were joining us so we had a huge round table in the corner of the restaurant. 

Andrew got a very nice bottleof champers for us all and we just sat eating and drinking until 1pm!! Our waitress was lovely and put up with a lot of banter from the boys (she was a Geordie), she did say that it was nice serving people from her nack of the woods.

We had such a laugh and my only regret was that Jon wasn't there as he'd had to work all day and wouldn't have ben able to get up to London in time to make it worthwhile.

We got back to the hotel about 2pm and all crashed out in bed...Mandy was by far the worst but hey..there's always one!!

Got home about midday.

Clare xx

What a horrible time I'm having....

Started on Thursday by having a tickly throat, this how my colds normally start and then the throat normally gets better once the cold kicks in.

Friday it was a bit better, although only due to regular pain killers. I did go to bed at 7.30pm though shivering and aching all over. Woke up on Saturday and seemed a bit better, had a nice lunch here with Judith and Gerry and then deteriorated by the evening again.

Sunday I was in agony all day, just like swallowing razorblades and my ears felt like they were going to explode.

Had a  really bad night and phoned up the Drs as soon as I could, went along at 10am and she said I had a severe throat infection...on anti-b's now for 8 days.

It may sound ridiculous saying that I'm having a horrible time but I can honestly say I haven't felt this bad since I had tonsillitus in 1994!!...all through my chemo etc I never felt this bad..gall bladder pain was totally different as it didn't effect my head..

Let's hope the feeling of uselessness goes as quick as it came..

Clare xx

Feeling so much better since having the radiotherapy - amazing what it does.

Good news today, had a letter from Wokingham Council Schools Admissions saying:

"All the evidence you submitted with your applicaton has been considered by the panel.  I am pleased to inform you the decision made by the panel is that Jack's application fulfils criterion B"

Just have to wait until 16th April to find out for definite whether or not he got a place at Radstock Primary. Let's hope there aren't 60 children who fulfil criterion A!!

I was a bit nervous when I opened the letter as I knew who it was from amd thought they were going to ask for more medical evidence. I had already sent a 2 page letter from my GP and a one pager from me, so was worried they would want something from the hospital - Jack would be going to secondary school before I got that sorted!!

love Clare xx

Had my radiotherapy done today.

Had to wait over an ahour though as the piece of metal designed specially for me wouldn't fit the machine.  Then they realised the wrong piece had been sent down with my notes.

It must only have been about a 50second blast if that.

Let's hope it did the job and I am pain free for a while

Clare xx

I was at hospital today for my Herceptin and as it's been 2 weeks since I was told I'll need radiotherapy to my rib and I've heard nothing, I thought whilst I was there I'd go and see what the hold up was.

No request in radiotherapy dept (no surprise there then!).

I told them I would be upstairs having treatment until about 12.30 and they said someone would investigate and come up and see me.

No one came (didn't expect them to), so I went in to see them again on my way out.  Spoke to someone different this time and after a bit of a wait she said I'd been booked in for plannig tomorrow at 10am and that an appointment card had been taken upstairs to the ward where I was -no one gave it to me!

I managed to get her to book the actual radiotherapy appointment for Thurs afternoon as well.

So do you think I would be going tomorrow had I not have enquired - No I don't either!

I get home to find a message on my answer phone saying could I urgenty call the radiotherapy dept as they have me an appointment for tomorrow and they need to now if i can make it - YES!

Hospital admin drives me nuts, I could have had the planning done today whilst waiting for the herceptin to be made up today.

3 trips in 3 days when it could all be so much simpler.

Oh sorry that was a bit of a grumble but always seem to chase appointments and do my own admin!!

Just hope the radiotherapy gets rid of the pain!

Clare xx

Have spend most of the afternoon sorting through Jack's box of cards etc that he's accumulated since he was born.

I now have 4 boxes - 1 for my leaving work and new baby stuff, 1 for his 1st year, 1 for his 2nd and 1 for his 3rd...it was lovely to read through the cards and messages that we got, we had over 70 new baby cards!!!  Made me quite sad as when people wrote the messages they had no idea (nor did we) what we face now. Everyone was so happy for us after trying for Jack for so many years and then the happiness turned to saddness all round.

I really must get on and start a proper memory box for him with things in about our family not just things that he's had given.

There is a website where you can get help doing the boxes...I don't really know what to put in it to be honest.  I'll have to have a look.

Love Clare xx