Went along for my session of radiotherapy to my ribs and asked if I could see consultant afterwards as I have a swelling on my neck.  Not sure how long it's been there but quite noticable now.

Consultant examined me and is fairly certain that the swelling is not just a swelling.

He looked at my notes and what was found after my last scan (new lung and liver tumours) and has decided that we should start chemo again.

If they can get it organised for my next visit for Herceptin they'll do it all together and that will be 6th July.

Oh what joy to lose my hair again and all the other side effects that I have to watch out for.

Gutted to have to be starting chemo again but if it buys me more time then bring it on!

Feeling a bit deflated as I feel so well..

Clare xx

I wrote a while back about my friend Paula.

She sent a text to me just before our holiday thanking me for the flowers I sent her and Matthew for their wedding day, I haven't heard from her since.

I have phoned her at home, on her mobile and texted...nothing.

This morning I thought I'd try one last time and rang her home phone.  Matthew answered and he was so sweet.  Paula has not had any visitors or taken any calls since she came out of hospital.

 She's doing as ok as can be but is sleeping most days as she is on so much medication.

Matthew suggested that I go round on Saturday morning or a while and I said that would be nice but if it causes and distress to her I'll just go home..I'll totally understand.

Her daughter Alice (she's 4) was mainly being looked after by Matthew's sister but they were dealt a blow 4 weeks ago when his sister was diagnosed with cervical cancer and is now undergoing radio and chemotherapy.

You think life's unfair until you hear things like this...

Love Clare xx

Hurrah!

I have dates for radiotherapy planning and the 5 actual sessions.

This Weds for the planning and then the 5 start on Weds 23rd finishing on Tues 28th.

I do wonder when I'd have heard if I hadn't have pestered and rung up myself (4 times in total).

Went to the Drs today and had another Zoladex injection, again I asked why it has to be done by a Dr and not one of the many nurses at our surgery.  So the Dr I saw suggested that at the next he will show the 'head' nurse what to do and maybe after that they could discuss the others being shown.  It really is a farce and he couldn't believe that there are only 3 maybe 4 Drs able to do this .  Seriously I could do it myself.

Love Clare xx

I've been patient (pardon the pun) and waited and waited...up until Friday I'd heard no word of when my radiotherapy planning might be.

I'd rung Dr C's secretary 3 times last week and not one courtesy call to say  'yes we know we're on it'.

Got in on Friday and there was a message from the radiotherapy planning team saying they were calling about my appointment made through my consultant...yes that's great but not even a hint as to when it would be and they'd all gone home when I rang back.

Being a bit of  'sherlock' I have  feeling it may be on Wednesday (no great detective really just that Dr C has clinic Mondays/Tues and Fri is out on Thurs so that leaves Weds!!)...it would have been good if they had said for definite as I could have been making childcare arrangements over the weekend...instead I won't find out until Monday!

Since I came back from our holiday the pain seemed to have subsided, just a sharp pain every now and then but this weekend it's back to being painful all the time and to make things worse I've got a cough and can't cough properly as it hurts too much.

I'm hoping that after Tuesday's treatment the pain might calm down again but I really need the rads to see it off properly.

Next week should see some action from the RBH...if not I'll be on the blower every day until it's sorted!!

love Clare xx