Wednesday, 24 August 2011

Well, I bit the bullet and phoned my Breast Care Nurse this morning, to ask if I could be put in contact with a Macmillan Nurse.

Back in June when I was diagnosed with brain mets, they said I would benefit from one but nothing came of it.

I'm really struggling with energy levels as I've said before and need some advice on what if any supplements I can take.

The BCN said I sounded as if I would benefit from a palliative care nurse now and even if it's just to go through managing my expectations better.

The BCN used to be a palliative care nurse and she will try and come up to see me Friday when I'm at the hospital for treatment to have a chat.

So it wasn't a phone call I wanted to make but one I really had to.

Love Clare xx

3 comments:

  1. Hey there,

    Just wanted to let you know we're rooting for you on Friday and the results of your scan.

    You mentioned supplements - did anything come of the Vit C therapy thing?

    Oodles and hugs and happy thoughts coming your way.

    Jan

    PS We'd love to come and stay in your fab new rooms - when are you free?!

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  2. Oh Clare, I do hope you can get some help. Good for you for asking for help. I know you are tough but everyone needs help sometimes.

    I have no experience of McMillan but lots of Iain Rennie which are similar. Fantastic nurses: couldnt praise them highly enough.

    You are amazing - never forget that

    Alex x x x x

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  3. Eyup :) lovely lady. I'm so blummin annoyed you're suffering right now. Hopefully you can get on top of this pain soon. Hang on in there and keep believing xxxxxxx

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