My poor sore hands - ouch!

Not much better today and so sore still...

love Clare xx

Phoned my Drs at 8am and got an appointment with my Dr at 10.40am - what excellent service.

Showed her my hands which she agreed were not looking good.

I have been prescribed Betnovate Cream and she also gave me a huge tub of aqueous cream to wash my hands with.

So watch this space - hands should start to feel a bit better in a few days time.

Love Clare xx

What a miserable chemotherapy Taxotere is.

I've not had the same side effects for any of the cycles and I keep getting caught out.

Today my hands are red raw, much worse than yesterday and I've had to take my rings off.

I have asked advice on a BC forum I belong to and it really needs to be sorted before it gets much worse.

I shall be going to the Drs tomorrow to get an emergency appointment to start getting it treated.

I will be so bloody annoyed if I can't use the sauna/hot tub/steam room at Centre Parcs in 2 weeks time...at the moment I can just about bare to put my hands in tepid water.

The damn stuff had better be doing what it's suppose to be doing and killing off the cancer cells as well as working it's way around my body as it pleases.

There is always an upside...at least I don't feel sick/nauseous on this chemo unlike FEC.

Love Clare xx

I'm right in the middle of my lowest immune time this week.

I shall say it quietly....not doing too bad so far, the main thing is fatigue..not tired as tired is overcome by sleep and I've had sleep it's plain ans simple no energy at all...exhaustion

My hands are suffering this time more than last, especially my right hand...all raw, sore and very red, not much skin peeling..thank goodness.

Silly me went shopping in Asda this morning and perhaps I should have done an online shop instead...how can leaning on a trolley be exhausting?

Off to 'baby Club' this afternoon as I need a serious catch up with any gossip, shouldn't be to hard to sit drink tea and chat...I've missed too many weeks

Love Clare xx

CT scan day today.

I know it's important but I just hate wasting time waiting...

My appointment in the CT unit was 1.30pm but I have to have my port accessed for the iodine dye to go through so had to be in the chemo ward at 12.15...just in case they were busy.

Well they weren't and I'd been accessed by 12.30.  So I sat outside and read some of my book and a paper that some kind person had left me.

Went to the CT dept at 1.30pm and I'm surprised no one heard me groan as I went in..all but 2 seats left and everyone looking glum.  They were running approx 1.5hrs late.

I'd had to starve from 9.30am but in fact I hadn't eaten since 7.30am as that's when I finished my breakfast.

Had the barium drink at 1.45pm and questioned the nurse as to how late they were running as I didn't want to have the drink and then have to wait ages to be seen.  He didn't seem to understand the problem..and I explained..I'd had nothing to eat or drink and he was expecting me to drink a litre of this stuff and then sit there holding it in my bladder until they were ready for me...not bothered said his face to me!!

I did start drinking at about 2ish and went to the toilet at the time they said and then waited...after an hour I was bursting but then got called in.

The actual scan only took about 15mins.

I was so hungry when I got out I went straight to the cafe and brought a huge jam doughnut - stuffed it straight in my gob!!

Went back up to the chemo ward to have the line from my port removed and home.

I will never accept an afternoon appointment again as they always run late.  

Roll on 15th October when  Dr C will let me know if the chemo is working.

Love Clare xx

I have just the most lovely day shopping with Wendy.

She needed clothes...I just wanted more!

We both got loads of nice things me: make up/2 cardigans/2 tops/sunglasses and we also got Wendy's birthday present from me ( a Pandora bracelet and charm - well you're only 50 once!).  Wendy did well too 2 pairs of boots/2 tops/ neckless/sunglasses/make up and the bargain of the day a swim suit from M&S Autograph ...£39.50 down to £1...bloody excellent spot by me!!

Whilst in M&S a woman came up to me and said I love your hair where do you get it done?...I replied are you serious...it's a wig!!... she was gob smacked and said was I serious?

So at least I know it looks real enough to fool others..not sure why I told her it was a wig think I was just chuffed that she didn't realise!!

The day was finished off with a lovely and cheap meal (thanks to a voucher I had) at Prezzos and a couple of cocktails at 'The Mix'.

Haven't had a day like that in ages and I loved it..girly chat/laughs/spending and most of all...eating and drinking...right up my street

Love Clare xx

4th cycle of Taxotere...over half way now.

Another long day.  Got there at 8.30am and had my bloods done after 4 attempts to access my port.  Not sure why they're having problems with it.

Went down to clinic for my 9.30am appointment there were only 3 others there which is unheard of.. so in reality I should have been in and up to the ward in record time...you would think that wouldn't you? ....in true NHS style the path lab only processed one tube of blood and I had to wait over an hour for the WBC (white blood count), they won't let you have treatment without this result.

Got back up to the ward at 11.15am and then had to wait until 12.30 to be called in...

I did tell the registrar about my hands and feet hurting and she said they would keep the dose as it is for this cycle as they aren't too bad and if they get worse they'll re-think the dosage.

I was booking in my next treatment and the nurse said if I go on Friday 15th Oct I'll have to have a re-loading of Herceptin as it'll be over 28days...this means having it over 1hr and then sitting there for 4hrs after...so we compromised and I'm going twice that week...Weds 13th for Herceptin and Friday 15th for Taxotere.

All rather complicated when you have chemo brain

Love Clare xx

I have done what I said I wouldn't...I have a wig!!

I love it..it's very similar colours to how my hair was before I lost it BUT...it's a lovely bob, short at the back and long at the sides.

I don't know why I was so against having a wig..well actually I do.  Last time I had chemo I was pointed in the direction of the hospital 'Wig Shop'...bad move -  not that many to choose from and when I did it looked like a dead gerbil on my head...I took it back the next day and got a refund!!

If I decide to get another within 4 weeks (either the same or different) I can get it half price...still a small fortune but hey...it's made me feel so much better..

Love Clare xx

I reckon I've had about all the side effects that are on offer with Taxotere...

Saturday evening the skin on my thumb decided to peel away and is very sore.  My fingers have been tingling for over a week and my feet very painful at night, so I should have guessed what was to come 'hand foot syndrome' (Palmer planter syndrome is the posh name).

My eyes are constantly watering and it's so bloody annoying, my make up gets ruined - believe me that is the only nice thing about my face at the moment as I'm trying to make an effort and even that's getting a hammering!!

My ankles have decided to start swelling too..lovely look I sport these days...bald, fat, swollen ankles, watery eyes, ridged flaky nails, sore hands and feet...a vision of beauty...lol

Will mention it on Friday as I think they can prescribe Vitamin B6...or do something to stop it getting worse.

Some nice things do happen amongst all this crap.  I had a lovely weekend, with Wendy over Saturday lunchtime/afternoon and we had a good catch up, Judith and Gerry over Saturday evening for an Indian and the Strictly Launch was on and then on Sunday Alexandra came over for a coffee and a chat...we have left it too long when we only live 30mins away.

Love Clare xx

Oh what a dilemma..

I know I'm half way through chemo but I really think I want a wig for Wendy's birthday weekend away.

We'll all be dressed up and hopefully looking glam and I really think that I'd feel better if I had a wig for the occasion.

My lovely friend Helen who wears wigs when she goes somewhere special has said she'll pop round next week and I can try hers to see if I could wear one.  She told me about Hot Hair and they have some very nice wigs at quite reasonable prices.

So roll on next week and I may be wigged up...or maybe not!  If it wasn't for going away I wouldn't bother.

Love Clare xx

After thinking I'd covered all angles I was proved wrong.

All previous side effects (with the exception of fatigue) covered and treated...I then get really bad itching under my arms..yes I have thrush in my arm pits.

Luckily the creams I was given last cycle can be used and seem to be working.

I will not be beaten by this chemo and by the end of cycle 6 I will have all side effects covered even if it means our medicine cabinet looks like a chemist shop!

Still feeling very tired and although Jon has been off work still feel as if I just have to 'get on with things'...I seem incapable of doing nothing.

Love Clare xx

It's started...feel so whacked today and I didn't even get up until 9.15..

Drove to M&S and Asda as couldn't face walking (it's 10mins walk max) and have had a lazy day with Jack making shortbread biscuits and eating some of them!

The weather is so nice and yet I just can't muster up any enthusiasm/energy to do anything not even go round to the park.

Feel sorry for Jack as my patience with him is nil and he's a good boy really just a cheeky 4yr old that I can't handle when I'm feeling down.

I don't want him to remember his Mummy as a shouty Mummy..just wish I could chill out and let him be a 4yr old...it's so hard when you inherit the impatience gene from your father and feel crappy to boot.

I have a day on my own tomorrow as Jack is staying at Grandma and Grandad's tonight and they are taking him over to the Isle of Wight tomorrow..bus, train, boat, lunch and then back again!!  Wouldn't even get up except I've got to go to the Drs for my monthly Zoladex injection...if it's not one thing it's another.

My feet have started to hurt at night like a throbbing/bone ache sensation when they are still (yes it's a side effect)..hope it wears off and doesn't hang around constantly.

Just thought I'd write down how I was feeling as I always say 'I'm ok thanks' when if I'm a bit more honest I'm far from it..sometimes..

Love Clare xx

I finally bit the bullet and ...

Booked Disneyland Paris for next April. I was under the influence of steroids and half a lager..that is my excuse for it anyway and the fact that I think as a family it will be a lovely load of memories to have.

Panicking a bit...Will I be well enough to go? Who knows what is in store for me after I finish this chemo. But my consultant says...just go with the flow and carry on as if you are well or you'd never do anything.

I knew that if I didn't book it now that we'd never go and I would maybe regret not seeing the joy in Jack's face when we tell him and when he gets there.  He loves Disney (as do I) especially Toy Story and that is big over there just now. 

I went to Disney Florida back in 1994 and loved it and said I'd never want to go to Paris as Florida is the place for Disney...but my health as it is tells me not to be stupid, to go to Florida would cost a fortune in insurance for me and I wouldn't want to travel that far away from home.

I have been looking over the last couple of weeks at the various hotels and read reviews on them (very mixed ones at that).  I just though that we're not really sun holiday people never spend much on going away and don't have to have a big holiday every year.  So I bit the bullet and booked the Disneyland Hotel right on the park..lots of £££'s but since my pension payout last year we haven't touched a penny of it and I can't take it with me..yes, I want to leave Jon and Jack with enough not to worry about things but my life assurance will cover the mortgage (all bar £10k - couldn't get any more when we moved).

So I have 8mths to try not to tell Jack, we'll tell him nearer the time when we're sure we can go.

Have yet to book the Eurostar as that can't be booked so far in advance - gosh hope my chemo brain remembers to book it!!

Love Clare xx

What a long day.

8.30am at the hospital to have my bloods done.  Downstairs for my 9am appointment with Dr C. which is the biggest laugh ever as he doesn't get there until about 9.30 at the earliest!

There were 3 of us waiting that had bloods done and the path lab were on a go slow, so we all just sat there..

I got called in at 10.25, went into the side room and sat there for 35mins whilst I could hear through the door Dr C on the phone talking flicking through notes etc...so I read my book!

When he finally came in he was flustered s he's not very technical and he'd be struggling inputting things on the shared info screen, he is so funny.

Bloods were good so I got the go ahead for cycle 3.

He examined the swelling on my neck/shoulder and he thought it had changed since he last saw me.  He's asking for a scan for me to be done before my next cycle.  He isn't going to be around at my next appointment (his son is getting married in Ireland and he said he thinks he'd better show up on time!). He said that if there is change for the better carry on, if there is no change carry on and if it's got worse (particularly liver) then to have cycle 4 and he would have a think about what to do next.

Back up to the ward and I had to wait until 12.30 to get started.  Not a problem as there were a good group of ladies to chat to and I had my book.

Managed to read all of it...it wasn't very long (Private Peaceful) but sad and I managed a few tears.

Home at 4pm after popping in to see Helen on the way home.

So that's half way through the scheduled treatment.

Next one Fri 17th September.

Love Clare xx

It's that time again.

Tomorrow, if all goes to plan I'll be halfway through the treatment.

Just got to hope my bloods will be ok...I'm sure they will be and I have the ok for more Herceptin as my heart scan was ok and I have the results in my sticky mitts.

Have a couple of questions to ask Dr C when I see him and I will ask him what he thinks he's doing giving me treatment that makes my head as bald as a coot yet my leg hair is still there...how blinkin' annoying!! - actually better not mention hair loss as he's lacking bit in that department.

So watch this space for mega moaning next week about how crap I feel...

Love Clare xx

A week ago I could hardly function.

This week I  feel like a totally different person. Sleeping much better and just going about my day to day things as usual.

I can understand why some people give up on chemo but it is only for 5/6 days at most that I feel really grotty...I would do those willingly if it gives me a few more years.

Had to have my regular heart scan today and all is good on that front so I can carry on with the Herceptin.

Just over a week until I start all over again...times just goes so quickly I'll be half way through then.

Love Clare xx

At last I feel like my normal self again. After a lovely afternoon on my own reading my book 'Her Fearful Symmetry' and resting.  All thanks to my friend Sarah offering to have Jack for the afternoon to play with Kiera and her sisters Lauren and Charlotte.

As well as reading I managed to do some more of my Memory Book for Jack. It's coming along nicely and just needs some tweaking here and there and then I'll be able to get it printed and bound.  It's only about 20 pages and it's all things that I would want Jack to know about me that perhaps Jon may not know, we only met when I was 31 so there are many things that he doesn't know aout me that I would want Jack to know.

I must enjoy the next 2 weeks as much as I can as the whole darn cycle will start again on 27th Aug.  Oh the joys of having cancer.

Love Clare xx

Feel so much better today, it's amazing what a difference 10hrs makes, and the right medication to treat the side effects.

Still not quiet 100% but at least I feel alive today!

I have so many kind friends and I need to learn to start saying 'yes please' when people offer to help.  It's all a bit alien to me as I'm a 'get on and do things yourself' kind of person.

Jack is off to play with his friend Keira on Friday and is staying to tea with her, that will give me some time to myself, to recharge. So nice of Sarah to offer to have him.

Jon is of work today and tomorrow so that will be a huge help.  

Love Clare xx

This morning I felt so weak and tired that I phoned the Drs to get an appointment  to sort things out.

Dropped Jack off at Mum and Dad's where he stayed all day.

My GP wasn't there but saw one who I'd seen before and she is really nice.

We discussed the lack of sleep and she prescribed some more sleeping tabs and said that as long as I'm sensible I could take them outside of my steroid time. I did say that in a few days I should be sleeping ok without them and I'm not one to take meds just for the sake of it.

I also told her about the extreme diarrhea and she prescribed some tabs for that and two lots of cream to sooth my skin.  Normally when you have diarrhea it 'stings' but this is full blown burnt skin and she explained as my immune system is so low that it would need extra help to sort it out as it's not repairing.  Next time I can be prepared in the 1st instance and not suffer for days like I have.

Managed to sleep most of the afternoon and then had a nice chat to Judith on the phone.

Jon is going to collect Jack who's had tea at Mum and Dad's and I'm afraid he'll be getting a takeaway as i just can't face cooking.

Love Clare xx

Feel like crying.

Was so tired when I went  to bed at 10pm.  Managed to sleep for an hour and a half and then that was it.

I've been tossing and turning for 4hrs, drifting off for 10mins at a time then being fully awake again.

I hate lack of sleep.

Love Clare xx

Feeling so bad for Jack today.  All I want to do is lay on the sofa and rest.  It's the school holidays and we have nothing planned for this week.

He doesn't seem to mind he's been playing with his Ben 10 stuff and we watched Alvin and the Chip monks (again).

This afternoon I will attempt to go to the lake with him to feed the ducks.  Just don't like to be too far from the bathroom at the minute, so we'll have to drive there.

Jon is off work two days this week so we will get out and about

Just did my ironing so that's all up to date again, there wasn't much but too much to leave until another wash load.

Looking forward to the week progressing as I should start to feel a bit better.

Love Clare xx

Oh what  horrible night I had.

Didn't take sleeping tablets as steroids ended Friday but I think I was still a bit hyper from them.

Had a dodgy stomach all day (diarrhoea) and had to get up a few times during the night.  When I did get sleep I had really horrible vivid dreams.

Jon and Jack got up early and left me in bed and I had a lay in just dozing.

Going into town later to get a new camera that I reserved.  Then off to Mum and Dad's to have roast dinner which will be lovely.

I hope the day gets better as at the moment I'm feeling tired, weak and just a bit dodgy.

Love Clare xx

6 days in and I'm not feeling too bad just a bit tired, no ulcers so far, bit of a strange taste in my mouth...water still tastes like mud!  A bit of diarrhoea but that shouldn't last. No lost voice this time so maybe it was just a freak coincidence.

Been taking the Tamazapam whilst on the steroids, so been getting great nights sleeps, no more of either of them for me for this cycle - no matter how tempting it will be...don't want to get addicted! Will see how I sleep tonight with out them.

Just going to have a nice relaxing weekend doing not much no make up, obviously no hair, easy meals and being with my boys...just perfect.

Love Clare xx

Second of 6 doses of Taxotere today.

Lovely journey to hospital in 7mins flat as no school traffic.

Had to have a blood test first and was called in at 8.40am.  The nurse who was accessing my port has only been doing them a few weeks.  I could tell right away that she was going to mess up (that seems harsh but true).  She was taking too long and being too timid with it.  Yep, she missed it and couldn't draw blood back.  Another nurse had a go and missed...twice.  Staff nurse had ab go and missed too.  Then the Queen of Ports came along grabbed it whacked the needle in and hey presto...blood!

Blood finally taken at 9.40am..already 20mins late for my appointment in the clinic but I needn't have worried as there was already a sign up saying that they were running an hour late...at 9.30am...how the heck does that happen?

At 10.55am I went in and saw Dr C he asked what side effects I had and wasn't ready for my comprehensive list that I'd done.  But he was impressed and said all the symptoms were normal..he wasn't sure about the loss of voice he said it could have been coincidence that I had a viral infection.

He was going to request a chest X-ray as I've been coughing a lot but said it wouldn't really be any benefit as I will be having a CT scan after my 3rd cycle.

Back up to the ward and they got started about 11.20am.  It take approx 45mins for the steroids and anti-sickness drugs to go through and then an hour for the Taxotere.  The nurse who set up the drip set the pump to 2hrs but said "there you go back in an hour"...I should have said something really at the time but thought she knew best. It was only when T Q of P nurse walked passed and noticed it was going at half speed that they changed the setting...so that took a bit longer.

Kate who I was having Herceptin with on Tuesdays popped in to see me and it was great to have a chat and a laugh.  She's due in tomorrow so I was lovely of her to do that.

Had my lunch (all organised and had done a salad) and then they did my next dose of Herceptin and said that trials had been done in Oxford and they were now allowed to do it over 30mins instead of an hour.  I had to stay for an hour after it had finished just in case I had a reaction but next time I can go as soon as it's finished.

Finally left the hospital at 3.50pm!!

Now to wait and see what happens this cycle with regards to side effects.

Oh and I'm back on healthy eating too.

***********************************************************

What a nice weekend.

Mandy, Nicky, Olivia, Megan and Carol came down on Friday to stay with us...yes they all had a bed of sorts but I think Carol may have drawn the short straw as she was in the kids room!...Jack still hasn't learnt the art of waking, turning over and going back to sleep..so he was up early with Gran every day!

We went to Legoland on Saturday and was a bit disappointed...it was busy but we expected that I think we just got spoilt when we went to Paulton's Park..great rides no queues.

Went for a meal after and Jack managed to fall asleep before his meal arrived.

Sunday we all went to see Toy Story 3 - great film and Jack sat still all the way through.

Had a lot of laughs, mainly whilst watching 'Chubby Brown' - horrid man, I tried to be disgusted but couldn't help myself laughing at some jokes and Peter Kay - who is just great.

They went back today and Jack announced that he'd like to go and see them tomorrow.  I don't think so he doesn't understand that they live 280 miles away.

Great weekend and great company. Jack loves having his cousins to play with.

Love Clare xx

Did my first trip into town with one of my scarves on.  Did get some looks but to be honest there are so many 'misfits' about these days that I seemed to just mingle in with them!

I have the scarves that my friend Sharon made, I used them last time and it was ok but...they have to be tied fairly tight and not so easy to just put on if the door bell goes, also fairly hot to wear even though cotton. Sunglasses are a no no too!!

I was pointed in the direction of 'Buff Headwear' and ordered a pale blue 'Buff'..it's fantastic.  Just pull it on and tuck under the back..there are several ways to wear them.  

It's just a tube of material no seams and stretchy so very comfortable.

Feel extremely guilty after Sharon kindly rushed and made me some new scarves but I will still wear them now and again.

Love Clare xx

Had a couple of very nice lazy days.

Today Jono shaved my hair off.

love Clare xx

What a lovely weekend..

On Friday Wendy gave the news that she has got a job with Breast Cancer Care.  A job which she is made for and they are so lucky to have her as part of their team.

Today Paul arrived from Spain for a few days, Judith and Gerry come over and we all went out for a meal with Mum and Dad.

Judith retired (early and poss semi retired!!) on Friday after being at her school for 23yrs.  She had a lovely book made by all the other teachers and it's so obvious that they all thought she was a wonderful teacher.  I know she's brilliant/kind/lovely/caring but it was so nice to see what others had written about my sister.  Her year 3 pupils also did her a book and some of their 'memories' of her were just so sweet.  Both books brought tears to my eyes.  I'm so proud of her.

On another note..hair..it's falling out big time now and it's really bloody annoying me..stuck to my face when I woke up as it had been on my pillow, stuck to me when I had a shower, all over the floor and down the plughole...I will actually be glad when it's finally gone.

I did think about suing Pantene as on the bottle it says 'Healthy looking hair within 10 days'...do you think they'd fall for it?

Looking forward to spending a few days with Paul and I must remember that I have to get the house ready for Carol, Mandy, Nick and the girls coming on Friday..better not leave it all until the last minute.

Love Clare xx

Hair falling out by the handful...but hey that's ok I knew it was going to happen..

Trying to hold on to it for as long as I can before I succumb to the razor!

School holidays have begun and I really hope I can have some quality time with Jack and have some fun too.

I seem to have developed a cold ...thanks Mum!!

After next week when our visitors have gone I'm back on the healthy eating malarky.  It's no good using treatment as an excuse to scoff I really do want to get back to how I was 2yrs ago.

Looking forward to a week of feeling ok and then back on the watch for side effects after my treatment.

Love Clare xx

As this week has gone on I've been getting back to my normal self.  Even managed to clean the bathroom today something which last week would have been impossible.

Angela came to do my hair today and although we know I'll lose it soon I wasn't ready to have it all shaved just yet.

So she cut it really short for me and it looks great.  Only a matter of time before it goes as it's coming out in handfuls already.

If all goes well and I get a break from treatment like I did last time, I'll be on 'Operation Bob' as I loved having a bob, just hope I have enough time to grow it back how it was at the beginning of the year...will take about 18mths to get it how I want it..here's hoping I get that chance.

Love Clare xx

Feeling so much better now I've got over the 'worst' time (day7-14).  Next treatment cycle I will have a blank diary for those days and rest up.

Strawberry Tea yesterday and a great time was had by all, total raised just short of £500 which is fab.  It gets better every year.

I'm so glad I managed to get there as on Friday I was doubtful.  It was great to see friends from a far...Sharon, Lisa, Jane and Liz.  Just wish I'd had a bit more energy to have talked all afternoon to them but wasn't at my best...I'm sure they'll forgive me.

Today I got a new laptop!!  I have wanted one for ages but couldn't really justify it but Jon said he thought I deserved one so off we went and I am now the proud owner of a lovely new one...not a re-jigged one that I've used for the last 5yrs swapping bits from one laptop to the other...a brand spanking new one!

A quiet week next week and then Sunday Paul is over - yippee!

Love Clare xx